by Susie | Oct 19, 2010 | Health Issues, Poetry, Uncategorized
As swooping as the Rollercoaster my heart hangs in fearful suspended news that fills these ‘purple days’. Days that bring shattered dreams, only the strongest mind can hold. My laughter becomes an echo that teeters on the edge, as I snap and break at...
by Susie | Oct 17, 2010 | Health Issues, Multiple myeloma, Uncategorized
Further to the post below. On Friday afternoon, we received two calls from Lincoln Hospital, one from the Haematology Dept and one from the Renal Care Support Team both informing us, that Hamada’s last creatinine blood level has lowered to 423 making his...
by Susie | Oct 15, 2010 | Health Issues, Multiple myeloma, Uncategorized
After a worrisome week and Hamada’s well considered decision not to continue with more treatments for the time being, which would now involve dialysis, we are both feeling relieved and peaceful that this huge decision is over. We have had what we believe was the...
by Susie | Oct 9, 2010 | Health Issues, Multiple myeloma, Uncategorized
A return visit again yesterday to the renal clinic brought more bad news I’m afraid. Hamada’s creatinine level is now at 530 (eGFR10 ish) and discussion about dialysis did not go well either. As Hamada’s arm veins are now badly damaged from...
by Susie | Sep 9, 2010 | Health Issues, Love poems, Multiple myeloma, Poetry, Uncategorized
As Summer fades and the air is filled with signs of Autumn. As the leaves start their change in colour and their sprinkling fall; the rhythm and flow of life continues its clever path. This in-between state that suspends betwixt the seasons is all my heart desires. To...
by Susie | Aug 24, 2010 | Health Issues, Multiple myeloma, Uncategorized
Just to let you know that Hamada has completed his first week on Revlimid and so far so good. Back ache which he is coping with but no feelings of sickness or other worrying symptoms so far. Hamada is of course very weary but managing to eat well. First early...
