Further to the post below. On Friday afternoon, we received two calls from Lincoln Hospital, one from the Haematology Dept and one from the Renal Care Support Team both informing us, that Hamada’s last creatinine blood level has lowered to 423 making his eGFR now about 12. Yes, a slight improvement ! The Urea had also lowered from 18 to 15.3 (which is good).
The Haematology Consultant now wishes to see Hamada in six weeks! He is sending a letter to confirm this even though Hamada had accepted it completely and was most agreeable with their advice not to attend any more Clinics. So God willing maybe, just maybe, once the Revlimid and Aspirin leave his body, the kidneys may improve enough to continue with more MM treatment.
I am sure there are many who understand, how hard these changes are to receive from day to day. As a Carer of someone much loved, I go from being saddened to the core of my very being, trying so hard to keep Hamada cheerful and with at least some hope. To being so elated that I spend my days dancing around like some demon mad woman, attached to my iPod forgetting to buy Vegetables and buying Lilies instead! It is nobody’s fault and I blame no one, it is as it is.
Yet,this rollercoaster of emotions is so very hard to deal with but I do so love being right about this, certainly for the time being at least.
If the Revlimid and aspirin leave the body could it restore the kidneys enough ? !!!
Praise the Lord for even the little things that make such a HUGE difference. I just got home from church where Hamada was prayed for as he is every Sunday and every night in my home and here was some uplifting news. We’ll take little miracles step by step, won’t we Susie?! It is indeed a roller coaster of emotions for you and those that love you and Hamada – even from a far distance like me. I feel your pain and understand the ride is very bumpy, but we’re not giving up, ever!! So, enjoy the good little tidbits of news and I’ll keep praying! My love to you and Hamada. XOXO Lora
Oh such wonderful news to read this morning, Susie. You know that I understand since Vern and I had more than a few of these moments when faith, hope & love prevailed in spite of what the doctors were saying. The MM rollercoaster ride is so difficult … love those exhilarating highs, but the lows can be so devastating emotionally. Keep doing your “mad woman” dance, Susie, and wrap yourself in the joy of this news. ♥
In my little town in the middle of the US, and across the world, earnest people are thinking about and praying for you and Hamada. I’m asking that his kidney function is restored and that the MM is put on the run. We accept the rollercoaster rides, but we don’t have to like them. Strength and peace to you both.
It is indeed a roller coaster Susie! Thus my blog title “Riding the Wave!” Sometimes its all I can do to “hang on!” At times it is exhilarating and I feel like a conquerer and at other times, I’m hanging on for dear life by my fingernails! Finding ways to minimize the extreme fluctuations of emotions is challenging!
Having said all of that, I’m very happy that their seems to be a bit of reprieve for you both.
Fantastic, Susie! So happy for you, for Hamada and for your family. I feel like dancing around like a mad woman, myself, now! 🙂 Keep buying those lilies!
Dear Susie,
We, too, as you know, are a’rollin and a’coastin. Carole is scared, and often I am, too. We grab hold of anything the doctors say that can be construed as positive. We are following yours and Hamada’s case, We hope ever so much that the kidneys will decide to wake up and function once the Revlimid and aspirin leave his system! Meanwhile, we also pray that the doctors here on the other side of the Pond will go ahead and administer Carole’s chemotherapy tomorrow. They must, but they might not. All depends on tomorrow’s rollercoaster ticket!
God be with the two of you !
Good news indeed 🙂 Prayers continue for you both, every day!
Thank you so much for all your caring messages of support, what extraordinarily kind people you are. Many of you have your own health worries and yet your hearts are so large with compassion for your fellow man, how perfect to know so many in this world of ours are so very kind.
The tallest trees are most in the power of the winds, and ambitious men of the blasts of fortune.
nice post. thanks.