by Susie | Oct 19, 2010 | Health Issues, Poetry, Uncategorized
As swooping as the Rollercoaster my heart hangs in fearful suspended news that fills these ‘purple days’. Days that bring shattered dreams, only the strongest mind can hold. My laughter becomes an echo that teeters on the edge, as I snap and break at...
by Susie | Oct 17, 2010 | Health Issues, Multiple myeloma, Uncategorized
Further to the post below. On Friday afternoon, we received two calls from Lincoln Hospital, one from the Haematology Dept and one from the Renal Care Support Team both informing us, that Hamada’s last creatinine blood level has lowered to 423 making his...
by Susie | Oct 15, 2010 | Health Issues, Multiple myeloma, Uncategorized
After a worrisome week and Hamada’s well considered decision not to continue with more treatments for the time being, which would now involve dialysis, we are both feeling relieved and peaceful that this huge decision is over. We have had what we believe was the...
by Susie | Oct 13, 2010 | Multiple myeloma, Uncategorized
A very clever compassionate fellow MM sufferer and such a dear person Paula over at http://feresaknit.wordpress.com/ sent a brilliant surprise for Hamada today. I don’t know how to thank her for filling our day with such fun and delight but having...
by Susie | Oct 9, 2010 | Health Issues, Multiple myeloma, Uncategorized
A return visit again yesterday to the renal clinic brought more bad news I’m afraid. Hamada’s creatinine level is now at 530 (eGFR10 ish) and discussion about dialysis did not go well either. As Hamada’s arm veins are now badly damaged from...
by Susie | Oct 2, 2010 | Uncategorized
The following poem is dedicated to my dear friend Dianne who lost her beloved Vern to Multiple Myeloma in September 2010. Vern and Hamada were diagnosed together in early May 2006. Vern was the most courageous Man and a true Warrior against this dreadful...
