Just to let you know that Hamada has completed his first week on Revlimid and so far so good. Back ache which he is coping with but no feelings of sickness or other worrying symptoms so far. Hamada is of course very weary but managing to eat well. First early blood tests are back but we won’t get the para protein/M-Spike yet. That I presume will be at the end of the first months course. Although sleeping most of the day which is pretty usual, there is a significant improvement in some of the blood readings Haemoglobin is up a tad and there is a substantial rise in the neutrophills due I believe to the injections of filgrastim three times per week.
July Blood Counts. HB10.06 – Platelets 63 -WC.1.7 NEU –1.04
Aug Blood Counts. HB11.1 – Platelets-71 –WC1.8 – NEU –7.1 !!
Para protein last reading 21.1 (which for those who don’t understand this very important reading is the number we are fighting to reduce)
We continue to go for weekly blood tests and then ring later in the day to confirm we can continue with this Chemotherapy regime. A real balancing act watching the condition of Hamada’s blood at every stage. Thank you Doctor C and Sister Tracy for this great attention to detail.
Hi Susie & Hamada:
Is this Hamada’s first exposure to Revlimid? I pray it works for him!Thalomid (Rev’s older sibling) worked a miracle for me. It took my count to zero before my transplant. Revlimid was not available back then.
Yes Mike first time with Revlimid. He has tried everything else we have here. Velcade did nothing so we are forever hopeful this will reduce the Myeloma burden. I was so happy reading your lovely letter on ACOR today it lifted my spirits and I read it out to Hamada and he said “well done Mike” sending all very best wishes to you from us here in the UK.
Hopefully this will help Hamada a lot. My lovely Lucien has had eighteen months nearly on this regime in France and is almost back to his old self. Yes, he gets tired and always rests in the afternoon but is able to garden again and cook again and looks amazingly well. Good luck and God bless.
Go, Hamada, Go! Praying earnestly that Revlimid will work its magic! All the best to you both. Sean M.