It was a sad day for us both yesterday which brought bad news that Hamada is just not responding well enough to the chemotherapy drug Velcade. With just eleven infusions received since starting in late February and many stops and starts along the way due to a chest infection, severe reduction in neutrophils and platelets, it has been hard work for him from day one. Now again the next and what looks like the last cycle of four Velcade infusions- unless a miracle happens- will be supported with Filgrastim 30MIU/05 injections started yesterday and continuing throughout the next four infusions. Hamada’s Doctor at Lincoln informed us that a very poor reduction of 4.5 in para-protein level after eleven infusions is really not good enough and is now most unlikely to make the 50% reduction needed to continue. Yesterday Neutrophils were an alarming 0.68 and PP still at 14 !
So dear family and friends unless another miracle happens and we’ve had a few, Velcade will not be the wonderful elixir we so hoped would work for dear Hamada.
Praying for continued strength and an over-ther seas miracle!
Oh Susie, I am so very sorry to hear this disappointing news. We’ve received a few miracles along Vern’s MM journey and shocked his doctors with the turn of events. I will pray that you and Hamada get your miracle and surprise his docs with the needed improvements in his numbers. Hold fast, dear friend.
Oh Susie…so so sorry…
But, as you said, you have already had a few miracles…so I am sending positive thoughts, very positive thoughts your way…
Prayers coming your way. xa
Such wonderful messages from my facebook page:
Joan Abegglen Kahley I am so very sorry to hear that. But never give up hope. Prayer is an amazing thing. Through God all things are possible. I will continue to pray for Hamada and you.
Friday at 14:20 ·
Judy Locke-Eekhof oh my dear friend I am so very sorry to hear that! You both are in my thoughts and prayers!!!! luv ya!!! xo
Friday at 15:29 · .Zena Jean Giessen Thinking of you both always, HUGS XXXXXXX
Friday at 15:46 · .Ben Hobbs So sorry to hear of your setback,all your friends are praying for you both,Hamada will beat this, lots of love xxxx
Friday at 16:07 · .Elaine McGrath We are thinking of you all too.XX
Friday at 17:24 · .Marguerite Adair A sad day, yes. but where there is life, there is hope. Let’s keep hope alive, and I lift you and Hamada up in prayer. And send Light and love to you.
Friday at 17:32 · .Paulette McEneaney I am praying for you xx
Friday at 19:29 · .Lora Abegglen Conrad And we NEVER give up hope because without hope, we have nothing anyway. This calls for additional prayers because you’re both worth the extra effort. Love always!
Friday at 21:48 · .Catherine Waldren Oh Susie – I’ve just read your posting and am so disappointed for you and Hamada – what a blow. Let’s hope and pray for a miracle in the next cycle – as you say, however little, it’s always something. Sending you both much love and prayers xxx
Friday at 22:00 · .Joan Mcguire Sorry to hear that Hamada has not responded well, We are all thinking of you both and we all send our love, hope the next cycle will be the one
Yesterday at 02:44 · .Audrey Blincow Thinking of you here in Dubai, and so sorry to hear the news is not as expected but hope that he improves with a little rest. Love Aud and co x
Yesterday at 09:36 · .Rosemary Liewald Susie I am so sorry to hear this set back you have both been so strong throughout this rigorous period of treatment . Have hope and I know you will continue to be as always strength to each other . Much love from The Liewalds x
Yesterday at 09:40 · .Jo Moursi We have had miracles before, all my love !!!! Xxxxx
Yesterday at 11:19 · .Jo Moursi 🙂 he’s a fighter alright! Xx
Yesterday at 11:39 via Email reply · .Ken Clark So sorry Susie; my best wishes are with you both. x
Yesterday at 12:32 · .Hollie Tyrone Watts Thinking of you Susie, miracles do happen 🙂 xx
Yesterday at 23:07 · .Karen Craven Hannon Im thinking of you both and pray that a miracle will happen xxx
6 hours ago · .Jenny Robson Miracles can happen, that’s what we will all pray for. Keep fighting brave man!! xxx
love light and blessings to you both x you are both incredibly brave x x
love light and blessings to you both x you are both incredibly brave x x