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A Chest Infection – 3rd June 2007

Poor Hamada – back in bed for the whole of this weekend, with yet another cold and now a chest infection. His very much reduced, white blood cells, affect his ability to fight off any infections. So he always succumbs easily. With the continuing severe pain in his spine – it has at times, been difficult to make him comfortable – he has been sleeping most of the time so now I’m really hoping he will be well enough to start his further treatment later this week.

Still, some excellent news from NICE in the media today, about the drug Velcade – thank goodness for that – I believe this new system will help provide many more Multiple Myeloma Patients, who need this drug, to receive it. – See More in Q & A @ www.myeloma.org.uk

When You Lived By The Sea – In Alex.

When you lived by the Sea.

Down the steep road you went
round the corner, heaven sent.
The long ‘corniche’ and turquoise sea
’twas brilliant sun, when you took me.
With the crowds in summer haze
we joined the throng just to gaze,
little brown boys having fun
chasing in the hottest sun,
and then we stepped, as you took my hand,
along those brilliant, hot white sands.

~

The turkish man with tray on head,
brings the pastries, as you bid,
on kites that fly in cobalt sky,
and when we talked, you and I,
of the future that we planned,
‘snooty’ camels passed at hand,
when you lived by the sea.

~

Snacks from Mama’s cabin there,
we sat in ‘ garland ribboned’ chairs,
little pots of tasty treats,
houmus, tabullah, syrup sweets,
games of cards with sharper boys,
dark skinned men, selling toys,
children laughing, happy fun,
smelling sweetly of the sun.
Yatching club at half past three
always there in time for tea,
when you lived by the sea.

~

Down that steep road we went
round the corner heaven sent.
On the side ‘Old Cecil’ stood
crumbled then, but very good.
Gordon’s Gin they found us there ,
and as we sat in rattan chairs,
breathing in that steamy air.
Silver trays with glasses bright,
we talked and talked into the night,
the punka fan whirled and swayed,
and in the night, I always stayed,
when you lived by the sea…

when you lived by the sea in Alex….

@ Copyright 2006
Photos courtesy : Matt Rutherford
All rights Reserved.

My Boys – Written July 2006

They came to wait,
to listen and to care.
They left their work,
their routines, their lattes,
and their lives,
but still they came.

Just one call,
a Mother’s need,
brought my boys, fast to me.
Nothing seemed as strong that day,
as those two boys,
who came my way.

I leaned towards them,
and broke my heart.
They stood tall and strong,
to share a Mother’s grief.
And they came.

They took the calls,
they took my arm,
they drove the cars,
they helped my heart.
They are my boys,
and they came….
@ Copyright 2006

The Precious Drugs

We collected the G.C.S.F Injections from Lincoln Hospital today – the precious injections that Hamada will start again next Thursday – they stay in the fridge until then -these will hopefully enable the ‘harvesting’ to take place shortly at Nottingham City Hospital. This is now the third try! He has been for a further check-up and ‘flushing’ of the ‘Hickman’ line today. One more visit next week and he is ready to go again. The pain in his back is severe but he feels he does not want more radiotherapy before the stem cell collection.

Love Songs -Written in June 2006

When he wakes to different days
I play the songs of sweet refrains.

The gentle strains to open eyes,
the sweetness of the days gone by.

The songs of love, the songs of hope,
as eyes and minds adjust to cope.

To waken restfully, to come alive
songs of days to pass the time.

Sweet refrains, and songs of love
just to help, and just to love.

When he wakes to different days
I play the songs of sweet refrains.

@ Copyright 2006

A Day Of Pain – 30 May 2007

Not a good day today, Hamada has severe pain in his back-I am hoping it is not another fracture – He manages to get up in the mornings with support and such determination, it is painful to watch. Still we have managed a slow walk around our little town, enjoying the sunshine and the fresh air and then a ride down our country lanes -seeing a newly born ‘Lincoln Red’ calf – on our return to the village – Hamada is exhausted but pleased.

Should I Pray Now.

Should I be praying
is the time now ?
will you be listening
if I pray now.

Have I got Angels ?
quickly come now,
should I be praying
I’m sure the time’s now,
would you be listening
if I pray now.

Where is my Gabriel
from angels above,
will you be listening
to help and to love.

If I open the door,
If I open my eyes ,
have I got an Angel
right by my side.

Should I be praying
is the time now,
would you be listening ?
If I pray now……

@ Copyright 2006

Sung by Jo @ http://www.myspace.com/jomoursimusic

Photo : Courtesy of Matt Rutherford.

I Will Live In This Village.

I will live in this village
with cornflowers blue,
I will love in this village,
a love that is true.
I will glean from each day,
no minute to waste,
I will live in this village
to quieten my haste.
I will love the large skies
with their dark twinkling hues,
I will smell sacred earth
with a love that is true.
But all I ask, is a slowness of pace,
I am seeking dear lord
to not let it race,
for the time is now
to enjoy what we can.
I will walk in this village
along green tiny lanes
only no one will see
the heart that is pained.
The tiny church,
strong in it’s place
holding all memories
I came face to face.
The sorrows of many
who went before,
who lived in this village
with love just the same.
And like my sorrows
they lived in this place
they loved in this village
with cornflowers blue,
they loved in this village
a love that was true……..
@ Copyright 2006
Photos : Courtesy – Matt Rutherford.

Can You Please Get Well.

Grandpa please, can you get well
please remember take your pills,
listen what the doctors say,
you must get stronger every day.

I love you so, I love the way,
you chat to me all the day,
for you are kind, you teach me lots,
and when you’re fine you laugh a lot.

We practise chess, and shoot at goal,
I wish you’d stay until you’re old,
sometimes you kick, and then you fall,
never minding, not at all.

Grandpa please can you get well,
you must you see, to catch my ball.
Grandpa please take all your pills,
cause who will feed the fish you see,
if you’re no longer here with me.

Your twinkling eyes that laugh with me,
the fun we have at Grandma’s teas!
Grandpa please can you get well,
please remember all your pills…

@ Copyright 2007

If You Feel You Cannot Stay.

If You Feel You Cannot Stay.

Darkest sky of leaden light

crescent moon in ageless flight,

Paris on a rainy day,

and if you feel you cannot stay

deep within my heart you’ll be,

and I will see it all for thee.

Pretty ladies passing by,

clouds of white that seem to fly.

Trees of green, in early bloom,

these will take away my gloom.

Look and see, for if you do

house on hill, and friends for you,

deep blue seas, the ‘honeycomb’ man,

and if you really have to leave,

then I will see it, just for thee.

The lovely child who’s soon a man,

I will guide him, if I can.

The music of those lovely years,

will drift with angels to your ears.

And if you really need to leave

then I will hear it, just for thee.

When your body is tired from trying

when your heart is slow to beat,

I will take you on a journey,

when we danced in summer heat.

Windows wide with sultry air,

scented perfumes in my hair.

You will hold me in your arms

and I’ll remember, all your charms.

We will twirl in tango sway,

and if you feel you cannot stay.

And if you really want to leave,

then I will see it all for thee.

I will see the memories past

and if I really keep them true,

then I can do it all for you.

But if you really need to leave,

Then I will do it all for thee .
@ Copyright 2006

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