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Home Again

by | Jul 22, 2007 | 5 Comments

Hamada and Ian

Hamada returned home after an eight day stay in Lincoln Hospital, he is still weak but so much better after the good care and attention received . Thanks to the amazing team in A and E – also to Mr Bowen and particularly to the young house Doctor – he knows- without naming- who went to extraordinary lengths to help sort out the many problems that arose – especially with the medications. Thanks also to the great team of nurses on ‘Dixon’, we could never do without your continuing patience and superb care. How grateful we are.

I Wish I Could Untangle You – July 2007

by | Jul 12, 2007 | 27 Comments

See twinkling eyes that dull with pain
eyes once bright as fire flames
we juggle pills to make it wane
with every day I cry for you
moving now is hard to do
limbs get stuck refusing to
unbend, and move as graceful should,
I wish I could untangle you
dreams that see you run again
walk the miles that never end
play the games we used to do
dance forever, just us two
this once strong man
who laughs with me
now has morphine in his tea
instead of ‘bubbles’ in a glass
thinking of sweet days gone past,
still we can dance, if very slow
so legs don’t stumble, I’ll
not let you go, put on
the music, hold me tight
and yes, it still feels very right
we’ll play the soft and gentle songs
the ones you love, we’ll float along,
I’ll watch your singing eyes
and wish I could, until I die,
I wish I could untangle you
I wish…. I could untangle you
@ Copyright 2007

Back To Hospital !

by | Jul 12, 2007 | 1 Comment

After a good consultation with Prof Russell and feeling happy about the plans for further treatment, Hamada was very unwell during Tuesday night, and after rather a panic ,was rushed at 4am by ambulance back to Lincoln where he has been re-admitted. He is stable and has been sedated for most of the day he will be there until further notice, a check by the Haematology Team today will tell more. Thank you to the wonderful paramedics who once again did a sterling job, so fast getting to us and so very efficient

Lincoln Hospital

by | Jul 10, 2007 | 0 Comments

A better visit today at Lincoln Hospital, a consultation with Prof N Russell of Nottingham City Hospital prove to be more promising. The Professor would like Hamada to continue with the current Chemotherapy regime for two more monthly cycles and hopefully reduce the levels again, to proceed to a stem cell transplant in late September, as he does have enough stem cells collected now. This has really pleased us,as we have a date to work towards. Hamada feels far more positive this evening and that works for me.

Thanks to all the kind staff we met again today- they all work so hard- and lovely smiles are always found for all their patients. Our thanks to you all.

Again thanks for all the recent messages from friends and relations in different parts of the globe, you never fail to amaze me with your great wishes of encouragement, they really do help to keep Hamada cheerful and they do lift his spirits so.

And The Music Played…..

by | Jul 6, 2007 | 9 Comments

So you found that quiet place
where lights were dim
and I was dressed in lace,
this boulevard of strangers
just the perfect place,
the candles melted slowly
Oh! your handsome face.

You found that quiet place
when you took me in your arms
the slowness of the music
you, and all your charms,
I’d left my heart behind me,
but then the music played.

So slowly we turned, on
this tiny wooden floor
I believed I had been here
just once before,
the closeness of you, in
this boulevard of strangers,
and yes, the music played.

So you found that quiet place
with little tables and wine to drink
nothing more, no broken dreams,
no promises, or time to think,
just you and some magic
and the music played.

So I left my soul behind me
and suddenly, I was free,
and the music played…
@Copyright 2007

The Daily Task !

by | Jul 4, 2007 | 2 Comments

The daily task and extra to this! are all the Chemotherapy Drugs Hamada is taking everyday in his battle to overcome his illness. Hamada is a little better this week but he has bone pain, which we are getting almost under control. He thanks everyone for their lovely messages of encouragement. he remains cheerful but thoughtful.

Such is the Pain Of Love

by | Jul 1, 2007 | 6 Comments

I drive across the fields of gold
the tears upon my cheeks not old
to leave him in this place so strange,
such is the pain of love,

this quiet gentle smiling man
whose eyes can hardly understand,
I breathe his courage, I live his fear,
such is the pain of love

he looks at me with eyes of love
to find a power from above,
I cannot fail, I cannot falter,
such is the pain of love,

why oh why, this wretched time
should pick this dear and sweetest man
when worlds have met as ours have done
for all of this to be undone
such is the pain of love,

but still we’ll fight and fight
to push the boundaries back,
we’ll lean together to gain more strength,
to learn and listen, and to wait,

this is the pain of love…

@ Copyright 2007

Yesterday More Bad News,

by | Jun 29, 2007 | 2 Comments

It was not a good day yesterday with a further visit to Lincoln Hospital, and after a terribly long wait, it was decided after consultation that the best course of action at this time, was for Hamada to return to Chemotherapy. To try to reduce the Myeloma cells and get them to a lower level to proceed to Transplant – the cocktail now includes , Cyclophosphamine,Dexamethasone, and Thalidomide and all the extras that go with that !
He also has some fractures of the vertebrae again and this causes some collapse of the spine which is so very painful . We have good drugs that cover the pain well, but he walks slowly and has lost more height. All these thing make me so sad- to see this lovely gentle kind man, suffer in this way. It is without doubt a despicable disease.

Not The Best Of Days.

by | Jun 26, 2007 | 0 Comments

It was another visit to Lincoln Hospital today. A busy one with Nephrology first, then on to the Alex Day ward for very nice nurse Michael, to take bloods and ‘flush’ hickman line. Hamada also had to complete a small part of a Renal Impairment Trial Study for the University of Leeds. This he completed, then on to the Haematology Dept for a discussion on ‘pain management’ regarding Hamada’s very painful spine. We now have a new ‘cocktail’ or at least a different way to give them! Also we heard the bad news that Hamada is no longer in ‘remission’ this means now that hopefully the transplant will take place sooner than later!. His readings of ‘Paraprotein‘, an important marker of this wretched disease, have risen. Also the ‘Bence Jones’ reading -which shows the presence, amount, and type of abnormal myeloma protein in urine – another important test, has doubled. This is just what we did not want to hear. He has also had further X-rays to his back to make sure there are no more ‘lytic lesions’. We are to return on Thursday to discuss all these issues. We shall endeavor to keep on fighting.

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